athickgirlscloset

athickgirlscloset:

congalineofdurin:

cockismybusiness:

team—wolverine:

therealbarbielifts:

eisforedna:

On May 28th, my sister, Edna, turned 31.

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Her mental age is about three years old. She loves Winnie the Pooh, Beauty & the Beast, and Sesame Street. Even though the below picture is unconvincing. 

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Edna and “Cookie.” I think she was trying to play it cool. 

My name is Jeanie. I’m Edna’s younger sister. I’m also her guardian and caregiver. 

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That’s me on the left. (Hey, you never know. After a year of writing a blog about online dating - Jeanie Does the Internet - I’ve come to learn that there are A LOT of fools on the internet.) 

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ANYWAY, I’m not “doing the internet” anymore. I’m taking care of Edna full-time, after completing my MFA in Writing for Screen & Television at USC.

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May 16, 2014. I wanted a picture. Edna wanted breakfast.

In case you’re wondering where our parents are, they’re dead. Our mom died of breast cancer when she was just 33. 

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Us with mom before she died. (Obviously.)

As for our dad, he peaced-out around the time my mom got sick. His loss - we’re awesome. 

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Here we are being awesome at the beach. Pushing a wheelchair in the sand? Not so awesome. 

In case you’re wondering “What’s wrong?” with my sister - as a stranger once asked me on the street  -  NOTHING. Yes, Edna has a rare form of epilepsy - Lennox-Gastaut syndrome - but I don’t know if that’s anymore “wrong” than people who don’t have manners. 

Basically, Edna was born “normal,” and started having seizures as a baby. They eventually got so bad that they cut off the oxygen to her brain, causing her to be mentally disabled. Or impaired. Or intellectually disabled. Or whatever you want to call it - except “retarded,” because in 2010, President Obama signed Rosa’s Law into effect, replacing that word with “intellectually impaired.” 

Which is cool and all, but services for the disabled and the people who care for them are SEVERELY LACKING. Also, there’s a bunch of people working in taxpayer-funded positions who are supposed to help families like us, but don’t. (Big surprise, I know.) They just fill out paperwork (whenever they feel like it) with asinine statements like this: 

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YUP. I transport my sister down the stairs in her wheelchair, because that is not only safe, but TOTALLY PRACTICAL. Why doesn’t everyone in a wheelchair just take the stairs, for God’s sake? Stop being so lazy, PEOPLE WITHOUT WORKING LEGS! 

But, as it says above, Edna’s legs do work. Whether or not she wants them to, is another story. 

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Edna refusing to go inside. 

These are the stairs that I have to carry her up - by myself - on a daily basis. That is, until one of my legs break and both of us are just sitting at the bottom of the stairs, helpless. 

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For six months, I have begged - BEGGED - the State of California to help my sister, which they are required by law - The Lanterman Act specifically - to do so. But they’ve told me “these things take time” and that I “need to amend my expectations.” (That was said to me when I refused to place Edna at AN ALL-MALE CARE FACILITY. Because yes, that was an “option” that was offered to me.) 

Prior to Edna moving in with me in my one-bedroom apartment, she was living with her amazing caregiver, Gaby, back in Tucson, where we went to high school and I did my undergrad. Edna’s reppin’ the Wildcats below. 

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But back in November, Gaby also died from breast cancer. (FUCK YOU, BREAST CANCER!) This picture was taken a month before she died. She never even told me she was sick because she didn’t want me to worry. 

By the way, we were raised by our grandma. Edna and her were very close.

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She’s dead, too. Surprise.

She died when I was 20 and Edna was 21. That’s when I became Edna’s legal guardian and Gaby stepped into the picture to help me out with Edna. 

So, six months ago, after Gaby died, I moved Edna to California, where I tried to get the folks over at The Frank D. Lanterman Regional Center to help me. I’ve told them I’m worried about our safety - that one of us could get hurt on the stairs -  I’ve told them I can’t afford to pay the private babysitters $15/hour because the ones social services sent me who make $9/hour were unreliable (they didn’t show up on time or at all so I could get to school and work), untrustworthy (one of them let Edna go to the bathroom in the kitchen and then took her into the bathroom because “that what I thought I was supposed to do.”) 

But the people over at the FLRC don’t return my calls, they don’t file the paperwork on time - and the first caseworker that was assigned to us actually LAUGHED AT my sister when he came to our home to evaluate her. When I reported him to his supervisor, she told me, “That’s just [insert name of said jackass].” 

He was one of the two caseworkers that contributed to the report I mentioned above, which also included this: 

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So let me get this straight - I have to feed, bathe, dress and help Edna in the bathroom and you can’t deduce whether or not she is able to vote? What in the fuck?!

Now I realize I seem angry. And you can bet your balls I am. I’m also sad. Sad for those who don’t have family to stick up from them and who waste away God knows where, monitored by no one. Or monitored by people who physically and sexually assault them

I’m also sad for the caregivers who are SO EXHAUSTED - trying to take care of their loved ones - while also trying to take care of themselves and battling a system that is supposed to help, but does nothing of the sort. And I know a lot of people give up. They let their dreams, their marriages, their friendships slide. All while trying not to resent the very person you’re doing it all for.

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Edna wanted to sit next to me the other day while I was writing. Clearly, she’s not impressed. 

Here’s the thing: I REFUSE TO GIVE UP. I’M NOT GIVING UP ON HER OR MYSELF. I’m going to pursue my dreams while taking care of her, AND while ensuring that the people paid to do their jobs ACTUALLY do them.

That’s where you come in. I need you to help me get my story out there. Because I know I’m not alone in this. I want to connect with families who are in similar situations and also show people who have no idea what it’s like to care for someone with a disability (or even a loved one who is sick) that it can be rewarding. Super fucking hard. Exhausting. Painful. Isolating. But, rewarding. 

I’m going to get help for my sister - and others. My hope is that by sharing our story, I can bring awareness to the lack of services and help for the disabled. 

Thank you, 

Jeanie 

Facebook:  facebook.com/eisforedna

Twitter: @EisforEdna 

This made me cry

SIGNAL BOOST

STOP SCROLLING. THIS PERSON ISN’T ASKING FOR MONEY AND THIS POST WON’T MAKE YOU SAD.

This is a really uplifting and inspirational story of a family sticking by each other and making things work despite a whole lot of shit

They just want to find other people in the same position they are, for a sense of community and to feel like they aren’t alone.

I know out of all of you, some of you have followers who are living with and taking care of intellectually or emotionally disabled family members, and this lovely and unbreakable pair of sisters need to find them.

SIGNAL BOOOOOOOOOST

I have to reblog this not cause she asked but because I have a mentally disabled aunt whose actually never been diagnosed. She’s well into her 40’s and we STILL dont know what her condition is. My grandmother took care of my aunt to the point where she basically handicapped my aunt even more. My grandmother passed away in 2007. My grandfather is her current caregiver but he’s in his 80’s. My mother is next in line. I say all that to say, I seen/see all the work & patience one has to have to be a caregiver to a mentally disabled person. They deserve the unmost respect.

strongforeverandalways
turntechdestiel:

thedoctor-and-his-trolls:

twatsaw:

hiphopdreamin:

lightsareout:

weallhavegunsforhands:

setfabulazerstomaximumcaptain:

The guy in the sleeping bag wiggling around
I’m weeping

The two people in the front wearing one shirt.

Are we really not going to talk about the guy in the back who is attached to another guy’s back while spinning?


WHAT ABOUT THE GUY THAT FALLS OUT OF THE WINDOW

WHY IS IT BACK

no you guys don’t understand, not only is this the first harlem shake out there… these guys aren’t normal military. This is “Telemarkbataljonen”. They’re pretty much the Norwegian equivalent of the fucking black ops. My brother knows a guy in this battalion, and when asked what they do there, he looked my brother dead in the eye and said “That is strictly confidential”. These guys are hard as shit, which makes this even more hilarious

turntechdestiel:

thedoctor-and-his-trolls:

twatsaw:

hiphopdreamin:

lightsareout:

weallhavegunsforhands:

setfabulazerstomaximumcaptain:

The guy in the sleeping bag wiggling around

I’m weeping

The two people in the front wearing one shirt.

Are we really not going to talk about the guy in the back who is attached to another guy’s back while spinning?

WHAT ABOUT THE GUY THAT FALLS OUT OF THE WINDOW

WHY IS IT BACK

no you guys don’t understand, not only is this the first harlem shake out there… these guys aren’t normal military. This is “Telemarkbataljonen”. They’re pretty much the Norwegian equivalent of the fucking black ops. My brother knows a guy in this battalion, and when asked what they do there, he looked my brother dead in the eye and said “That is strictly confidential”. These guys are hard as shit, which makes this even more hilarious

strongforeverandalways

whatfandomisitanyway:

mosaicsanity:

sadsuicidal-girl:

fatkidprobs:

bloodstainedarms:

dainte:

deepandbleeding:

karkles-the-adorabloodthirsty:

dropxdeadxmisery:

Must reblog.

Whoever compiled this is a beautiful human being. <3

I’m so happy someone finally did this.

holy shit the number for canada is near where i live 

INSTANT REBLOG!!!

I don’t care what kind of blog you have, you better reblog this.

Forever reblog

I need Indonesia suicide hotline :c

The only number I could find for Indonesia is 500-454. It’s the number for Jakarta’s suicide hotline.

Everyone should reblog this

also! if you or someone you know who needs to talk to someone has phone anxiety or otherwise can’t/doesn’t want to talk on the phone, imalive.org is an online crisis chat line!

strongforeverandalways

How to feel better about yourself:

1. Sleep without underwear every once and a while, it’s good for you. Maybe even try sleeping naked.

2. Take long baths with tea, ice cream, or whatever you please. Throw in bubbles if that’s your style.

3. Look at yourself like you look at your best friend. Find the freckles you love, what your eyes look best with, what hairstyle compliments your smile.

4. When you look at your naked body in the mirror, only think good things. Say compliments to yourself aloud. Watch yourself smile, and encourage yourself.

5. Take yourself out on a date. Treat yourself to the things you love. You’re alone yes, but there is nothing wrong with that. Remember all the times you were smothered by people and talking crowds, and you only wanted to be alone with yourself.

6. Write yourself a love note. Tell yourself your favorite things about you, and tell yourself all the things you want to become. Tell yourself you’ll love you forever.

7. Take pictures of yourself. Selfies are magnificent! Take 500! Take them everywhere! Find the good lighting! Pick your favorite one and realize what a wonderful work of art you are.

8. Acknowledge your accomplishments, all of them. Got out of bed? It’s hard sometimes and it’s been hard before, so honestly great job. Drink lots of water, and at the end of the day congratulate yourself for staying hydrated. Let yourself know when you are proud, and soak up the feeling of “well done”.

mermaidandthemoon

2damnfeisty:

rozhanitsa:

2damnfeisty:

Nobody gives the black girl mob credit for being smart as fuck. They clown but at the end of the day they are really intelligent.

And it’s not subtle at all.
Taystee is a math prodigy in addition to being well-read, Poussey is multilingual, Cindy just knows shit, Suzanne studies Shakespeare, Watson was a good student in addition to being a track star, Vee is basically an evil genius. Piper often learns the most from them; they taught her how to fight and helped translate Pennsatucky’s biblical threat.
The show flat out acknowledges the (academic) intelligence of the black inmates time and time again, but the audience collectively ignores it.

ALL OF THIS

strongforeverandalways
crystaltokyogorepolice:

teenagemutantnegroturtle:

ask-aphsiberia:

mr-pond-parties-in-the-impala:

cosbyykidd:

It’s worked for white people, I figured I might as well give it a shot.

GET THIS GUY TO DISNEY WORLD DAMN IT

I want you to go man!

if this was a white girl this would have had the notes 3 weeks ago

People are sending him racist messages telling him it’s not gonna happen and he doesn’t belong in Disney World over this post. So we’re gonna reblog it even more.

crystaltokyogorepolice:

teenagemutantnegroturtle:

ask-aphsiberia:

mr-pond-parties-in-the-impala:

cosbyykidd:

It’s worked for white people, I figured I might as well give it a shot.

GET THIS GUY TO DISNEY WORLD DAMN IT

I want you to go man!

if this was a white girl this would have had the notes 3 weeks ago

People are sending him racist messages telling him it’s not gonna happen and he doesn’t belong in Disney World over this post. So we’re gonna reblog it even more.